I had intended to try to post every day, starting January 1st, for a year. That was broken yesterday because my son AJ fell at school and broke a bone in his right foot. After spending the afternoon and evening in the local ER, we came home with his foot in a splint and are off to Children’s today.
This post doesn’t have much to do with church, but it is so difficult for a child with autism who is non-communicative to understand what is going on and to explain to him why he can’t put weight on his foot and has to wear a big splint. He kept trying to pull it off for most of the evening and kept taking our hands and putting them on the splint, indicating his desire for us to remove it, and we kept having to say “no, sorry.”
My child is usually very active, running, jumping and climbing everywhere–and it is heartbreaking to see him unable to stand up, unable to move around easily, and he is clearly frustrated by it.
It was also frustrating to have to repeat “he has autism, he doesn’t communicate” to several of the doctors and nurses yesterday. Most got it. But one nurse did not understand, and when they called in an order for pain meds, we told her (as we had told the intake nurse) that he will not take medication orally. She was frustrated and basically stomped out of the room. Incredibly rude, and not helpful–and never came back to offer another solution so he was never given pain meds in the hospital. Something we will have to report later.
But the ER doctor and the other staff were great. And AJ was able to communicate somewhat. He said “scary, scary” to us. He said, “Mommy, mommy,” when the nurse started to wheel him away (I was right behind him but he couldn’t see me) and he said, “Help, help.” He let us know what he needed, and exhausted and tired at home, he let us know he wanted juice and peanut butter and jelly, his favorite.